Two songs this week and a hard one.
I will get the whinge over and done with first – ‘Pollution’. Every night for the past couple of weeks the air has been polluted with smoke. I live in the Thames Valley and am surrounded by farms and fields and I can only think it has something to do with that. No member of the public would be burning something at 10 pm. I like to have my window open, only slightly on a damp night, and have been waking coughing and wheezing during the night. I have had no wheeze for about 8 months so it is so frustrating. One of my fungal friends has been writing about the same problem in his blog. /clifframblingman.wordpress.com. I know that being near all this farm land probably isn’t the best place to live for some one with Aspergillosis but I do love it and it is convenient for us to get to anywhere we want having access to motorways near by. The choice of song was hard as I thought ‘The Air That I Breathe’, In The Air Tonight and ‘Smoke gets in your eyes’ but they all have a romantic theme and coughing a wheezing is not very romantic! Then I thought ‘Smoke on the water’ but that didn’t seem apt so opted for ‘Pollution’ by Tom Lehrer https://www.youtube.com/watch?v=nz_-KNNl-no Apologies to my american friends.
Now the ‘Happy’ part.
First off I had my appointment to Brompton to see my wheezy doc. I have a mouldy man, wheezy doc, bone man and sugar woman! Anyway Prof (wheezy) was very pleased with me even though my oxygen saturation was only 92 and has agreed to let me reduce my prednisolone to 10 mg. Now this is really good for me I haven’t been below 15 mg for over 5 years so hopefully the treatment for my Aspergillosis is working. I got the lecture about having my flu jab and be careful and the first sign of breathing problems I am to increase the dose again as I nearly went into respiratory arrest after Christmas. I am sure I will be okay because I haven’t had any bugs since February this year so I must have built up some kind of defence. (I am trying to convince myself). Whilst I was seeing Prof hubby went to the Hummingbird Bakery to get me a cake. He also got one for himself and 3 for a neighbour!
Loads of cake shops around Brompton but these are my fav. Not good for diabetics but one treat every few months can’t be bad and hopefully reducing my steroids might help my diabetes. Prof also had a chat with me about the Aspergillosis Trust which he is hoping he will be able to help with even though it is not really his field. We are just happy with any help or publicity.
The other bit of good news is that this week we hopefully helped in the Autumn Air-Quinox for the Fisher Lab. People were asked to put out some sticky mat things (I know all the jargon) for 6 hours on the 24th Sept and then send them back to get tested. This is being done for every Equinox to measure the fungal spores in the air. It is great being able to help all these doctors/scientists who in turn are trying to help us.
Also in the past few days I have received 10 new selfie photos which will be on the website soon hopefully so the Wall of Fame is expanding. If you would like to add your selfie you can download a card at http://www.aspergillosistrust.org/submit-your-selfie/
We also have loads of merchandise which help to spread awareness which we are happy to send anywhere in the world in return for a donation and postage.
I have had a lot of card orders and I am pleased to say only 2 left – quite big ones but I am getting there. So if anyone wants Christmas cards and merchandise let me know.
Take care and keep well