Another week has passed and I am so pleased with myself.
As you are all probably well aware I have been struggling with my numerous infections recently. I was asked to attend a meeting at NHS England by my mouldy man. I really wanted to go but the idea of getting up to London to an area that is very busy had me worried. I usually drive in London, it doesn’t worry me at all, but the area the meeting was consists of a lot of one-way streets and I wasn’t sure how easy it would be to park. I am so short of breath at the moment I didn’t want to have to walk too far. Thankfully Waterloo mainline train station is not that far from NHS England Headquarters. I live not far from Windsor and trains from Windsor Riverside Station go into Waterloo.
Hubby said he would come as he knew I would struggle with train doors and getting around the station. I am so glad he did. I think I would have collapsed halfway along the platform. Once outside the station, we hailed a taxi. London cabbies are great, he literally dropped me right outside the door and told us when we had finished if we just went around the corner we would get a taxi quicker as it was two-way traffic. Signed in and thankfully had time to sit to get my puff. Hubby went off to look around the Imperial War Museum as he hadn’t been there for years and it was just down the road.
Meeting went off okay and was very interesting. I was well looked after by all the staff there. Found me a lift and took me upstairs and made sure I had drinks and I was okay. After the meeting, my mouldy man walked with me to find Martin as he knows I have been feeling rough. He was quite shocked at how short of breath I am walking anywhere and told me he would phone me on Wednesday when he was at clinic so he could call up all my tests.
Trip home was so busy. Hubby just said get on the first carriage that has seats as it would get full. It was just after 5 pm and the number of commuters was quite mind-blowing. Hubby used to work in London in the city which is over the east of London and we are in the west. I don’t know how he did it for 40 years. One day was enough for me. Got to Windsor station and I was getting off the train and the door started to shut trapped my arm. I thought it would release once it sensed something was in the way but no hubby had to press the button to open the door again. I now have a lovely bright purple bruise on my upper arm!
My mouldy man rang at 11 am on Wednesday and said my lung function test had gone down by 10% which isn’t good as one of my readings (FEV) is already 0.9. He also commented on the fact that my last sputum grew two bugs and moulds. I explained that I am just full all the time and getting really tired and I have a dull ache on my right side continuously. He has ordered an urgent CT scan for next Tuesday and I have to take all my gunk (nebuliser) 3 times a day instead of twice. I will be going through books like nobodies business. He told me to email him after I have had the scan and as he is in New York next week he will try and view it remotely.
The NHS is truly an amazing thing and the support I get from the Royal Brompton especially the support from my mouldy man is second to none.
I just thought I would write this before I have my next dose of jollop!
I have now finished another card order and still have one to go but if anyone wants any Christmas cards please let me know at firstname.lastname@example.org. They are £1.20 each or 6 for £6. Have a look at the website http://www.aspergillosistrust.org you can see everything we get up to, read patient stories and order lots of lovely awareness items which would make lovely stocking fillers for Christmas and we have the beautiful new 2020 Calender.
Take care everyone and be happy! x